We had great chance to talk to pediatric surgeon on the previous day. That was second conversation from the diagnosis. The first talk was good and that was the better. He really impressed us. I sure he is a good surgeon, doing the best he could and researcher for developments about CDH. He was ready to answering our all questions whatever they were.
We asked first about early labour planned on Monday. He said there was a demand coming from principal of NICU but after my e-mail, no one was persistant anymore. Previous week, We had taken some e-mails about remaining babies with CDH in the womb close to estimated date of delivery. He said that he printed my e-mail and sent to principal of NICU. We talked about especially warnings in the Sheri’s posting.
Baby Jaxtyn’s mom, Sheri is a very strong woman had 3 CDH babies, despite the less than 2% chance of re-occuring. Pediatric Surgeon, Dr. I. Serdar Arda agree with the opinion that the longer stay in the womb would may be better. But anyway, planned induction will be clearly good for our baby. Our home is far from hospital about 20 km. and travel time may extend to 1 hour sometimes because of heavy traffic at rush hours.
Then he talked about Baby Kaya who previously passed away on 20th day of his life. He said that Baby Kaya had been transferred from another hospital to Baskent Hospital lately and a lot of time lasted for diagnosis until coming to surgery section. The baby had very severe, right sided CDH. Despite all negativeness, Dr. Arda said he could overcome his pulmonary hypertension! As well as, he said the baby was a candidate for ECMO in a certain. And the other CDH baby from Konya is now at 25 or 26 weeks pregnancy. We have most greatly wished that Baskent Hospital would have an ECMO immediately.
Our OB/JYN Dr. F. Yanik will be on vacation this week. We have an appointment with Dr. D. Eroglu on this monday morning early. We will talk about delivery date again with her but as far as we're concerned, it will be good that planned delivery should be at the 40th week of the gestation. This time is between July 11 and July 15 (EDD is July 18). And sorry for not showing Baby Mert’s photos, yet! But we promise, we will take a lot of pictures for you soon, if everything goes well.
We asked about C-section or normal delivery. Dr. Arda told us differences of them and said that we may prefer Caesarean but if we want to normal delivery, we must consent to being transferred to C–section in case of any abnormality when necessary at that time. He notified that, for now, normal delivery was being preferred in CDH but according to last some research pulmonary hypertension might be triggered as a result of stress during normal delivery, which is just fresh in the lots of studies.
As result, Dr. Arda said, doctors and us depend on Baby Mert! They will be ready for coming Mert whenever he will. And he let us feel our decisions were important. We relieved so much when we heard these sayings. He also said we can call him 24/7.
We thank for your prayers, supportive thoughts and all postings. Especially, to “Breath of Hope” yahoo group members, to Sheri and to Lisa (mom of
Baby Owain). Our prayer list is full of your names everyday. Please keep us and all CDH babies in your prayers.
Aytekin and Emel.